“People with Cystic Fibrosis can never meet due to the risk of infecting each other”

 

We designed and delivered a six-week online storytelling workshop to support a group of young people living with Cystic Fibrosis to find friendship, understanding and confidence through shared digital stories.

We designed a six-week ‘story sprint’ with the young reporters where they had two-hour virtual meetings every week and chatted to each other via a chat app. What emerged was a powerful set of stories. There were stories about:

  • feeling stigma at school
  • the difficulty of their daily routine
  • the stress of being hospitalised
  • the importance of good friends who can help to support them

This digital approach gave the young people the ability to connect with each other using tools that they were already familiar with. The project also meant that one young participant from India had the opportunity to engage with a group of young people in the UK.

We also ran a session called ‘Crazy 8’ where participants were given eight minutes to come up with eight ideas about how Cystic Fibrosis affected their everyday lives. We then discussed these themes and grouped them into eight main categories.

Each workshop was used to do a deep dive into one of these themes before designing a social media campaign as the final output.

Watch their videos here